The neurology report is in...and guess what? Mighty Joe has holes in his brain...let me repeat that...HOLES in his brain. He has two big ones on the back of his brain (round like walnuts) and two smaller ones toward the front (dime sized).
(Photo on right taken of Mighty Joe when he heard the news...he was very concerned...until we told him that he could use it as an excuse for getting bad grades...)
Now, I'm not a neurologist, but I'm pretty sure that having holes in your brain is not good. Actually, the neurologist said the same thing: "His brain has had damage...and that's not good..."
Here's where it gets good though... The neurologist had never met us, so he based his comments on the CT Scan and EEG from our time in the PICU and the MRI that we took in August. So, he fully expected to meet a baby who was blind and had regular seizures. He was generally happy to hear OUR report that Joe was normal (although we weren't sure he believed us...). Then when he actually examined Joe, he was SHOCKED to find out that Joe could see (tracked his hand, differentiated colors, blinked, smiled, giggled, etc...). He continued to remain baffled that Joe could bear weight on his legs, and that he actually shows all signs of normal brain function. I love it when a doctor that has received extensive training in neural pathways says the words: "Well...this just doesn't make sense..."
All in all, it was a good report. Apparently, the damage was not virus related, so it was not officially an encephalitis. Actually, it was the dehydration that caused his blood pressure to drop, which then caused these sections of the brain to die! In an adult it would mean certain blindness and seizures...but as we all know...Mighty Joe is a super hero...and what doesn't hurt him, makes him stronger! (well, that's what the script will read...when the movie comes out!).
The areas in his brain that were damaged control eyesight, reading, and balance. They are also typically responsible for seizures. So, to some extent, we will wait and see what happens.
Follow-up is simple. We need to see a pediatric ophthalmologist to evaluate his ability to see, we need to monitor him for seizures and any other funky brain related responses in his life, and we need to see the neurologist twice a year!
Meanwhile, Kendra and I continue to enjoy the look of stunned doctors and hearing the phrase: "Hmmm, this just doesn't make any sense..."
Deuteronomy 32: "Now see that I, even I, am He, And there is no God besides Me; I kill and I make alive; I wound and I heal; Nor is there any who can deliver from My hand."
Quietly Making Noise,
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